May is ME Awareness Month. Between 17-30 million people worldwide live with this condition. I am one of them.
Since the pandemic, the rate of diagnosis has increased significantly as those with Long Covid have been diagnosed with ME. Whether raising money for research or simply speaking about it on social media, we aim to show people that this is a genuine condition which destroys lives.
For 2024 I will be mainly using social media during May to highlight events, charities, as well as articles to help others understand this condition.
On this page I have listed links to articles, charities, events, and more, that I will be using in my social media posts.
Articles
The Health That Failed Me: My Story of Chronic Fatigue Syndrome
Chronic Fatigue Syndrome: How Does It Affect Someone?
Are ME Sufferers Making It All Up?: Chronic Fatigue Syndrome Is Back In The News
The Danger of Being An ME Patient: How Medical Indifference Can Kill
Why Do the ME/CFS Community Protest So Much?: MECFS Remains A Contentious Issue
Events
ME Awareness Month Support Twibbon
UK ME Charities & Research
Tymes Trust: The Young ME Sufferers Trust
Hope 4 ME & Fibromyalgia Northern Ireland
WAMES: Welsh Association of ME & CFS Support
Advocates
Tom Hennessy (1954-2013)
ME Association Champion Bloggers
Books – medical professionals and patients
Jessica Taylor-Bearman’s books
Books from the ME Association and here
Documentaries
The Forgotten Plague – free to watch on YouTube
Unrest – free to watch on YouTube
Podcasts and YouTube
Chat With ME – Apple | Spotify
Post-Exertional Mayonnaise – Website | Amazon | Apple | Audible | Spotify | YouTube
#MEAction – Apple | Audible | Spotify
The ME Action Network – YouTube channel
The Monster In ME – Jennie Jacques YouTube channel
Stripy Lightbulb CIC – YouTube channel
The Chronic Collaboration – YouTube channel
Charlotte Clark 